This Journal has been read times since its creation on September 23, 2003
Happy birthday little journal....thank you for the wonderful journey.
Tuesday, September 23, 2003
The discovery Hopeful | HGTV
This isn't the first time I've had a Doctor tell me there is something wrong with my brain. It's not the first time someone's said Multiple Sclerosis. There are things one can control and there are things that just are. A chronic illness is one of those things...what's one to do? Lay down and die? Kick and scream? Nope, most people respond the same way...read everything possible and exhaust the internet.
Quest number one is am I going to die? I was okay once I realized I won't die and I can still have sex. (Apologies if that offends anyone, but most of you should know me by now.)
I have read three great books: Managing the symptons of Multiple Sclerosis by Dr. Randall Schapiro (4th edition), MS Updated Edition by Dr. Louis Rosner and MS the Facts You Need by Dr. Paul O'Connor. Chatted with several people who have MS and they all responded the same way.
The spinal tap is Thursday at 7:45am but we won't know anything until the following week. My Doctor has Fridays off. I promise to update this journal regularly with any news we get. Perhaps you are wondering why have I decided to keep such a public record of this journey. It's fairly simple really, to record the emotional, physical and spiritual journey forced on me and to have a place to share it with each of you at once. It is exhausting to cover the same info over and over and over and over. I am so loved by each of you BUT there is only so many times a person can tell the same story before one falls asleep repeating it. LOL. :-)
I am planning on being open and brutally honest with my emotions so please remember that just because the day might be bad, my life isn't. If you respond to my journal please be kind, if you picked open the lock on my diary you might withhold critical judgement. Peace and God's love. xxoo ckb
ckays1967 at 7:49:00 PM EDT
This entry has 4 comments:
Dear Chrissie, It seems that the first message I wrote has been erased, puters aggravate me. Anyway I want you to know I love you and am thinking and praying for you all the time. Many times I remember all the good times we had when you were growing up. The many trips, mexico and Florida. How much help you were and always glad to do it. I'm so glad I have had all these memories with you. Love Grandma
Comment from ks1930 - 9/25/03 4:13 AM
Your body is a temple to God Almighty, take care of it and he will take care of you.
Good daily health practice is what keeps us all in good health, once you let go of that then you let go of life, which is so precious to us all, we have but one body, one life to live, make the very best of what God has given to you, no one is in control of that more then you.
love,
Aunt Robyn
Comment from rgerkin - 9/24/03 4:00 AM
Chris, You are a blessed child, and have always been. Keep looking forward, and hold on! I love you.
Aunt Sandi
Comment from snippetts - 9/24/03 12:05 AM
Well, my Dear Friend, you are VERY much loved and will now certainly be in a lot of prayers. How well I remember how upbeat you were about your brain tumor and now this - somehow it just doesn't seem fair.
But then who said life is ever fair to anyone?
Just know you will be constanly in my thoughts and prayers.
Anne
Comment from dallas0406 - 9/23/03 9:32 PM
ckays1967 at 10:10:00 PM PDT Link to this entry
This entry has 12 comments: (Add your own)
My "journal birthday" is today. The year has gone by awfully fast, n'est ce pas? Lisa :-]
Comment from mlraminiak - 9/25/04 9:47 AM
Dang it! where was I yesterday? In a total fog! I sent myself a reminder to wish your blog a happy birthday, and still forgot.
bad mumsy.
Any leftover cake?
Comment from merelyp - 9/24/04 9:32 AM
{{{ Chris }}}
Happy birthday to a wonderful Journal!
V
Comment from deabvt - 9/23/04 10:49 PM
Happy Birthday Dear Journal....and to it's author...the blessings of good health and happiness. Hugs, Lisa
Comment from cw2smom - 9/23/04 9:37 PM
Happy Birthday Journal!
Wow, a year already....powerful first entry Christina....
~jerseygirl
Comment from cneinhorn - 9/23/04 9:18 PM
Gosh, has it been that long? You share so much of yourself here and it has been a 'easy' way to keep up with you, Charlie and Peanuts, even though it hasn't been a very 'easy' year for yall.
But please do keep on, I know we will keep up, no matter, but this has touched my heart and my soul.
Love you,
A
Comment from dallas0406 - 9/23/04 3:41 PM
Happy birthday little journal....thank you for the wonderful journey you've given Christina and many others. Love, Mom
Comment from tsgerkin - 9/23/04 7:41 AM
At 1 year, if your journal was a dog it would be 10.5 human years old, if a cat it would be 20 human years old
Patrick http://journals.aol.com/daddyleer/CaregivinglyYours/
Comment from daddyleer - 9/23/04 5:37 AM
HAPPY BIRTHDAY!!!!!!!!! LOL Wish I had thought of that in Aug. for mine.. but the date went by unnoticed.. so unlike me since I am into B-Days!
Much Love,
Mary
Comment from hunybea4him - 9/23/04 12:07 AM
Happy birthday indeed. Just look at all the people your little journal introduced you too. I'm so happy you created it and that you're part of my life. Big hugs, my friend. *Barb*
Comment from barbpinion - 9/22/04 10:51 PM
OH! HAPPY ANNIVERSARY TO YOU! Wow, a year already. I love your journal. : )
Angela
Comment from readmereadyou - 9/22/04 10:30 PM
Congrats on the birthday! I love to hear about your journey...though I am a new reader. I hope you plan on staying for a long time. :)
http://journals.aol.com/barbaramck/ATicketToRide/entries/922
Comment from sharkie412 - 9/22/04 10:25 PM
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